What is this assessment based on?

This assessment is built from established psychological frameworks and studies that have shaped the understanding of autism in adults. It draws on research such as the Autism Spectrum Quotient (AQ), the Empathy Quotient (EQ), and the Cambridge Behavioural and Cognitive Neuroscience studies from the Autism Research Centre at the University of Cambridge. It also adapts findings from broader work in cognitive psychology and personality research to create a fuller picture. We also included the personal research of our own project team. We’re not doctors, we’re geeks and people living with autism.

Why is this not a formal diagnosis?

A formal diagnosis can only be given by a qualified clinician after detailed interviews and observations. Not everyone feels the need for this in adulthood. Some people are happy to explore their identity through self-reflection and understanding without going through the medical system. Others choose a diagnosis because it can provide validation, access to support at work or in education, or a more precise understanding to share with family and friends. The process can be costly and time-consuming, with private assessments often ranging from several hundred to several thousand pounds. This assessment is not a replacement, but it can help you decide whether pursuing a complete evaluation is right for you. For some people, a reflection is enough now that schooling is done.

Why do you include notes on each question?

We chose to include short notes with each question on purpose. Many adults who explore autism have spent years masking or second-guessing themselves, and we wanted to create a process that feels transparent and supportive rather than like a test. By showing why each question is being asked, we reduce uncertainty, build trust, and make it easier to answer with honesty instead of worrying about what might be the “right” response. This approach is part of our aim to make the assessment modern, respectful, and genuinely helpful for self-reflection.

What happens at the end of the programme?

You will receive a personalised report, shown on screen and also delivered by email, ready for download. This report summarises your answers and highlights patterns in relation to autism and related conditions. On receipt of the report, the project for you is complete. It’s yours to reflect on and to use in your own journey. Due to sizing, it’s much easier to download the PDF and read it on your own screen or through a printed copy than only in the email, sorry! We tried to keep it concise, but we know you like data.

What do I do with my report?

Your next steps are entirely up to you. Some people keep the report private, while many choose to share it with those close to them as a way to support conversations and self-understanding. If you wish, you can also use the report as background information when speaking to a healthcare professional or an employer. We are open about our project and hope you find it useful.

What if it says my scores do NOT reflect autism?

The report may still be valuable even if autism seems unlikely. It can reflect other traits, conditions, or psychological states that shape your experience. Many people find that these insights help them understand themselves better, regardless of the conclusion. Our banding for suggesting you DO reflect those who have been diagnosed is reasonably high.

Why does it cost money?

The systems and research behind this project cost far more than the small access fee can cover, and we want to be clear that we are not a registered charity. We aim to keep the cost as low as possible so that people who need more than a free quiz, but who are not ready for or do not wish to pursue private clinical services, can still access meaningful support. If you find value in the assessment and would like to help sustain the project, donations are warmly welcomed.

What about data and ethics?

We’re good. The creator of AutisticOrNot (Alex Sass) has been validated by The Association for Advancing Participatory Sciences (AAPS), which is a member-driven organisation that connects people from a wide range of experiences around one shared purpose: advancing knowledge through research and monitoring done by, for, and with members of the public.

Citizen science – the most recognisable term for this practice – is expanding the reach, relevance, and impact of science in almost every area of inquiry; in the field and online; through local and global efforts. With increased attention to citizen science, AAPS brings depth to the understanding of citizen science, both as public engagement and as research, and sheds light on the integrity and complexity of the practice.

Who built it?

Alex Sass has worked in ‘big data’ and human happiness studies for decades. He made a career in the digital industry during the Dot Com Bubble and was diagnosed with ASD (Autism Spectrum Disorder) at the grand old age of 39. This project is his gift back to a world in which many adults have lived without clarity, without support and without understanding the difference between personality quirks and things that are ‘built-in’.

Following a busy life in London and the Cotswolds, he relocated to the Canary Islands (where he works entirely remotely on a very quiet volcano) in 2019. This project was launched in 2025 with the generous support of the EU (Canary Island) Digital Media Fund and Alex’s private clients. Only Alex owns and operates the system with no external commercial influence.

Email enquiries welcome: (please NO spam!) hello@autisticornot.com